Ryan did have to take Joel to children’s hospital today. They had to deaccess Joel’s port (removing the external needle.) When they reaccessed it, they got it to work. Ryan was home by 2pm, and couldn’t quit talking about how much fun he and Joel had. Joel was very happy and loved having dad all to himself to play with all morning.

Comments

There are 7 comments for this post.

  1. Bailey on February 10, 2013 5:29 pm

    good thing it wasnt really bad.

  2. heather on February 10, 2013 9:59 pm

    Sending prayer and love for your family.

  3. Heather LeBlanc on February 10, 2013 10:47 pm

    I pray that Gods glory be proclaimed in yalls life. God is good. I laughed and cried and thanked God for the story yall shared on God Tube. Joel is such an adorable young boy with a laugh that just lights up the world. Yall are in my prayers and I thank God for yalls strength and un movable love for God. I wish there was more people like yall. Thank you for letting me be a small part of your world.

  4. Krissy on February 11, 2013 3:09 pm

    I was brought to your website by your wonderful YouTube story. Gosh! I cannot tell you how touched I was. Joel is such a special miracle and I am adding him to my rosary prayers. Your faith and Hope is just fantastic and I thank you for sharing your story. I am very troubled right now in my life and have been truly struggling with my faith, but I think God led me to your story. I have a renewed outlook! Bless you and your family!!!!!

  5. Rebecca Wagers on February 12, 2013 12:07 pm

    I watched your story of Joel, and was brought to tears…Joel is such a lovely, little boy, and both of you are so blessed to have him, as he is so blessed to have parents such as you…Joel is a miracle, and I pray for your continued strength, and that God will continue to enfold you and your family in His loving arms, giving you comfort, and healing little Joel…God bless you, my prayers are with you every day.

  6. Maggie Parker on February 13, 2013 4:13 am

    Hi I was reading about joel (and praying) I saw that he has AT/RT. I know a little girl Ariana (at St. Judes) she has AT/RT/ Has also been sent home on hospice a few times. The last time she had maxed out on radiation and Chemo so it looked pretty bad. Her parents got a call that they have a new oral medication that was experimental that they havent used on Children or AT/RT but at first she was turned back again as the tumer had gotten a little too big and was on her spine but now they are trying it on her and last I heard it has cleared up her tumors greatly! I don’t know what the name of the drug is but I can find out. I do urge you to ask the oncologist about this very knew not yet approved still experimental drug Currently being used at St. Judes in Tenn. for Arriana.

  7. amyg on February 13, 2013 9:51 am

    Thanks Maggie. I actually saw your comment under the video too. I tried to send you a message on facebook, but I’m glad you posted here. I’m asking my neuro-oncologist to talk to the neuro-oncologist there. (They were roommates in their residency so they touch base fairly often about treatment options. The fact that Arriana was sent home on hospice multiple times sounds a lot like Joel. Even the same kind of tumor can have different sub-categories and AT/RTs are so new they’re not all known, but I wonder if their specific tumors are similar.)

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